Managing use of personal data

We use your data for:

  • Contact with you about the population screening programmes
  • Contact with other care providers about your screening
  • Improving our screening programmes
  • Scientific research

Your data is protected

Your data will be stored in our system. We make sure that the data is always well protected. Our system not only stores basic information, such as your name or address. It also stores everything else we need for your screening. That includes photos and test results.

Some data may be used for other purposes: to improve our screening programme, or for scientific research. If your data is used, we make sure that the researchers do not know whose data it is.

Your choice about how your data is used

If you do not want us to use, share or store your data, you can let us know. The options are listed below. For more information, click on the choice you want to make.

After the screening, you will receive the results from us. If necessary, we refer you for follow-up diagnostic testing. After that, we retain your test results. This is how we can see when we should send you the next screening invitation. 

Do you want us not to store your test results? Then you can let us know. Please contact our information line.

We are responsible for implementing the population screening programmes properly. That is why we store your data in our system. We can use that data to invite you to take part in population screening.  

Do you not want us to retain any of your contact information and test results? Then you can let us know. Please contact our information line.

We share data with general practitioners (GPs) and other care providers, such as the hospital or laboratory. This allows us to work together to give you the care that is right for you.

Would you rather not? Then you have two choices that you could make:

  • I do not want you to share my test results and X-rays from the breast cancer screening with the hospital.

  • I do not want the laboratory to check if I went to the gynaecologist after referral from the cervical cancer screening.

Do you want to make one or both of these choices? There are two ways to do this:

As part of a referral from the colorectal cancer screening, we automatically make an appointment for an intake in a colonoscopy centre. Do you not want us to share your data with the colonoscopy centre? Then contact us through our information line before you send in your stool test.

Do you not want the laboratory that assesses your smear test or self-test to send the results to the national pathology database? Then complete this form and send it to the laboratory. You can request the address of the laboratory from our information line.

We invite many people to take part in the population screening programmes. We want the screening programmes to be as effective as possible. For that reason, we are constantly looking for ways to improve our screening programmes. Your data may be used for that purpose. If it is, we make sure that it is not possible to see which data is yours.  

If you do not want us to use your data for this purpose, you can let us know. There are two ways to do this:  

We may sometimes use your data to help with scientific research. We follow strict rules for this process. Wherever possible, we use your data without your name. That means that no one knows which information is yours. We make sure that the researchers cannot see which data is yours. 

If you do not want us to use your data for this purpose, you can let us know. There are two ways to do this: